Join the Stiff Person Syndrome Global Registry

Welcome to the Stiff Person Syndrome Global Registry (SPS Global Registry), a registry dedicated to individuals and families impacted by SPS. This registry serves as a central hub for sharing patient experiences and contributing vital information to drive research forward.

Join us in building a stronger, more informed community and impacting the understanding and treatment of Stiff Person Syndrome.

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?